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Giant chest mass poses huge challenges: Freddy’s NICU story

For years, even earlier than they bought married, Ray and Liza Soto knew they wished a baby.

They tried, however to no avail.

Then, ultimately, the Sotos, now married for 5 years, discovered they had been going to have a child.

A boy they’d identify Freddy.

Alas, at across the finish of Liza’s first trimester following a routine checkup, her native physician delivered devastating information.

“We discovered a mass in your child’s chest,” he stated.

“That shook us to our core,” Ray recollects.

Observe-up visits revealed the mass had grown.

“They had been telling us we may abort himmainly, that he had no likelihood,” Ray says.

The Sotos would have none of that.

Refusing to surrender on their unborn youngster, they prayed for a miracle and determined to simply accept their new child, no matter his situation or future challenges, as a valuable present.

“There’s nothing I can do for you guys,” one physician advised the Sotos when Liza was 5 months pregnant.

Liza thought to herself:

That’s all I need my son to have – a life.

I don’t care if he has different psychological or medical points. If he’s respiratory and alive and might smile and know who we’re, that’s what issues.

Ready for the worst

Liza’s water broke on Aug. 7, 2021, and Freddy arrived prematurely at 33 weeks the next day. As a result of his stomach was so massive, docs needed to carry out a C-section. 

Freddy’s medical workforce had been ready for the worst. 

He got here out with a dark-blue shade and wasn’t crying. Medical doctors drained a number of fluid from him and took him to the neonatal intensive care unit (NICU) as soon as he was secure.

Freddy was placed on a ventilator and IVs. He was shifting a bit however not wanting good.

A few hours later, his physician suggest he be transported to CHOC for the next degree of care.

Freddy arrives at CHOC’s NICU

A couple of minutes later, a CHOC helicopter whisked Freddy to its hospital in Orange.

Pediatric surgeon Dr. Maryam Gholizadeh has been at CHOC for 19 years. She knew immediately Freddy could be a difficult case.

“When he got here into the NICU, he was extraordinarily sick,” she recollects. “He was on a ventilator on a really excessive setting, and it was troublesome to maneuver him to get imaging performed. We would have liked to get a CT angiogram (an imaging check that appears on the arteries that provide blood to the chest) to determine his vascular anatomy.”

A multi-disciplinary workforce mobilized to deal with Freddy, together with neonatologist Dr. Amir Ashrafi, pediatric heart specialist Dr. Sanjay Sinha, cardiothoracic surgeon Dr. Brian Palafox, neonatologist Dr. Robert Hillyard, pediatric pulmonologist Dr. Sunil Kamath, neonatologist Dr. Ziyad Alhassen, and neonatologist Dr. Daryoush Bassiri.

Bronchopulmonary sequestration (BPS)

A NICU workforce managed to manually pump Freddy’s lungs so he may get the CT coronary angiogram.

Medical doctors detected a tear-shaped mass within the 4-lb. new child’s lung. It was benign, however its massive dimension was the issue.

They identified Freddy with bronchopulmonary sequestration, often known as BPS or pulmonary sequestration. The uncommon start defect happens when an irregular mass of nonfunctioning lung tissue types throughout prenatal growth. BPSs can result in respiratory issues, an infection and life-threatening problems like coronary heart failure.

The mass inside tiny Freddy was pushing his coronary heart and left lung to the proper aspect of his physique.

Liza and Ray with new child Freddy on the NICU at CHOC Hospital in Orange

“Due to his state of affairs,” Dr. Gholizadeh says, “there was not an entire lot of room for error. This case was extraordinarily complicated.

“When Freddy got here in, it actually required all these specialists to place our heads collectively and take the tumor out within the most secure approach attainable. Freddy completely had no reserves. Every little thing needed to be performed completely with none blood loss. Any complication would have simply tipped him over.”

 Per week after Freddy was born, docs efficiently eliminated the mass from his chest.

“It got here out properly and simply with none bleeding,” Dr. Gholizadeh says.

Praise throughout for CHOC docs and nurses

Freddy remained within the NICU for 4 months earlier than he was discharged. He underwent a tracheostomy and had a feeding tube ship vitamin straight into his abdomen.

Liza recollects listening to Freddy cry for the primary time after surgical procedure.

“We waited so lengthy to listen to his voice,” she says. “After I heard him cry I used to be so completely satisfied. It was a tremendous expertise.”

The Sotos say CHOC docs patiently and kindly defined what was taking place from the beginning.

And so they praised Freddy’s nursing workforce.

Liza, Ray with Freddy in a while throughout their four-month keep on the NICU at CHOC Hospital in Orange, with Freddy rising and creating every day

“They’re superb,” Liza says. “They’re powerful. They see this type of factor day in and day trip. They made it simpler for us.”

Freddy’s nursing workforce included Noreen Popat, Jamie Rayburn, Nikki Haun, Cassandra Simon and Kirsten Galloway, in addition to Karin Mitchell, Freddy’s speech language pathologist.

“I cherished taking good care of each Freddy and his household,” Kirsten says. “Coming to work and seeing Freddy and his household at all times introduced such a smile to my face, and watching his development to lastly getting discharged was superb to witness. He was such a powerful little man with an unbelievable assist system.”

‘Having fun with each second’ of Freddy’s progress

Dr. Gholizadeh says Freddy is progressing nicely as he continues to develop.

Ray says broken tissue in his proper lung continues to heal and that issues have been shifting in the proper course. 

“He makes noises and is aware of who his mother and father are,” Ray says. 

Freddy likes to the touch a mirror in his crib and grasp hanging toys. 

“He strikes his head and appears across the room at the whole lot,” Liza says. 

She provides: “It’s been a extremely lengthy journey, and I owe the whole lot to the docs and nurses at CHOC.”

Ray, who used to work at a hospital in environmental companies, now could be Freddy’s full-time dwelling care supplier. Liza, a former bus driver, is a stay-at-home mother.

“Freddy is rising and getting stronger day after day,” Ray says. “We’re very grateful and having fun with each second.”

CHOC Hospital was named one of many nation’s greatest kids’s hospitals by U.S. Information & World Report in its 2020-21 Greatest Youngsters’s Hospitals rankings and ranked within the neonatology specialty.

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